No doctors have never mentioned that before but my cousin has. My cousin’s daughter was diagnosed and the doctor told my cousin that she most likely has it too with her symptoms.
What drew me to this site was the craniocervical instability. I read the symptoms on your Mayo Clinic’s website and a lot jump out to me.
I experienced early on an electrical sensation in my neck. It sounded sort of like what a cluster of electrical wires sounds like.

I should also add I was just diagnosed with mild tendenosis by an orthopedic. I have this cyst like bump on my wrist and I have severe issues with dexterity and strength in my wrist. I have more of these up my arm. The ones up higher are bigger. They didn’t show up on the MRI either. So he said he thinks they’re lipomas and I shouldn’t worry about it. I asked if he could help with the tendenosis and he said there was nothing more he could do. Didn’t tell me what to do next either.