Our experience with neobladder surgery has certainly included several complications and we are still dealing with more surgeries needed 9 months after the original surgery. With your history of colon cancer and surgery, I wonder if you would even be a candidate for neobladder. They must have enough ileum to form the neobladder, and scar tissue from previous surgeries is a big issue. It seems to me creating a neobladder would increase your odds of having a colon cancer recurrence there, vs a urostomy. It will be months before we know how well Tim can do with his neobladder, and he has lost some kidney function as a result of the complications. After the fact, we are finding out about the frequency of complications, because we did not ask enough questions about that topic in making our decision. Tim knew he did not want a urostomy, so his decision was made early. Knowing what we know now, I would have pushed for a urostomy over neobladder, but it wasn't my decision. Timeframe for Tim: 9/2019 partial cystectomy for invasive bladder cancer. 12/2021 total cystectomy,prostatectomy with neobladder creation. 122 abscess of incision line led to draining using thru incision, Leaking are was plugged by adjusting the foley catheter balloon. 3/22 CT scan shows one ureter partially plugged. 6/22 CT ureter is now closed off, not patent, causing hydronephrosis on that side. a week later a nephrostomy tube was placed and they tried unsuccessfully to open ureter, also biopsy showed no cancer there. Finally have an October 13 appointment to have ureter surgery to remove blocked portion and reattach to neobladder. The surgeon hopes to do it robotically and says very slight risk of complications from this surgery. Once this is healed, he can have the large incisional hernia repaired that was the result of the abscess,etc. This has been 3 years of multiple cystoscopies, biopsies, catheters and stents. It sounds like you are well aware of these things. Best of luck to you.

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