Can Neuropathy be cured?

Just this past week I've developed a new outlook - acceptance and not finding a cure or treatment, even though I've been on the hunt for it since 2007; 15 years is a long to time to search.

Research is the key - and searching on clinical trial sites still turns up empty. What a shame. This means we still need to be the voice for this condition.

Hoping “someday” comes soon!

And, it isn't soon enough!! My wife and I were comparing what I did 3 to 4 summers ago to what I can do today.
Moreover, what I can't do today. There just isn't enough publicity about the seriousness of PN.

I can’t even walk right anymore. My neuropathy is so bad.

Pregabalin made my neuropathy worse and sent me into a seizure. I’m very sensitive to medicines.

I have found that there are different types of causes for neuropathy. I have diabetes that is under control, and I have neuropathy in legs and arms that comes and goes... I am currently exploring the cause of my neuropathy being pinched nerves along my spine area and also restricted blood flow in my lower legs.. Go to a foot doctor that is familiar with vein surgery for lower leg area... I have discoloration around my ankles which is one of the signs of leaking veins and poor circulation... If you have scar tissue or calcium build up along spine this could be cause a nerve pinching problem... Go to a spine specialist to possibly get an MRI to see if there is damage....

pamelaz - When I went to Mayo in Rochester in Feb 2020, I was told not to take Lyrica because with my axonal sensory-motor PN, neurologist said Lyrica can actually make my neuropathy worse. Went off because it was not helping with my condition anyway.

I’m sorry to hear this, but it is interesting and important. Did the neurologist offer you a different treatment?

Interesting Ed - Same idiopathic diagnosis, but I had a regular Neurologist prescribe the Lyrica not too long ago. I got home with it and just put the bottle away; after filling it, I wasn’t exactly sure why we added it. My fault for not asking my doctor what he thought the benefit of adding it would be; I didn’t report a change in my condition or anything other than hoping for a diagnosis & cure some day😃; my Neuropathy has been maintaining with all else I do and take. So I decided not to take the Lyrica and have to adjust to the possible unintended consequences of adding to my medicine list for my total health management, and will keep the pills in inventory until I see him in 6 more months when I’ll make sure we discuss the thinking on adding one more pill in my life. (At the moment I only take Gabapentin for Neuropathy, but I have some other prescriptions for other condition) Thanks for sharing your experience with Lyrica and the advice from your Mayo doctor.

pemelaz - The neuro doc at Mayo did not offer an alternative med for my PN. I had been prescribed Gabapentin by my primary but did not have good results, anger issues. Not normal for me. Doc removed me from that and tried Lyrica. Did not help and while on Lyrica, Mayo said don't take it. Could be because of my type of PN. I have no pain in feet or legs, numbness only. Axonal sensory-motor PN was the final dx I got at Mayo. It is very possible Lyrica will help with other types of neuropathy, it is something each person needs to determine for themselves. Some get relief, others not. My lower back pain unrelated to PN - so the docs say. I take only tylenol and advil as needed.