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Newly diagnosed with NET in liver

Neuroendocrine Tumors (NETs) | Last Active: Dec 11, 2022 | Replies (24)
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@harley4650

I have NET cancer of the liver it started in the small intestine tumor was removed from small intestine. now taking hormone shots {4} had a cat scan last week tumors got larger. Now they want to start pprt. UNDECIDED

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Replies to "I have NET cancer of the liver it started in the small intestine tumor was removed..."
Colleen Young, Connect Director | @colleenyoung | Sep 20, 2022

@harley4650, I encourage you to read and ask questions in this related discussion as you consider whether to start PPRT or not:
- PRRT for NETs: Questioning whether I should continue or not https://connect.mayoclinic.org/discussion/prrt-for-nets/

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char1962 | @char1962 | Sep 22, 2022

Hi I was diagnosed with NET in my small intestines just like you in 2011 I had surgery and the plan was to monitor area to see if what was left would grow and fast forward 2022 my annual scans showed it had matastized to the liver and both ovaries so for 11 years it was inactive, I see now that it’s a slow growing tumor, now that I have multiple ones I’ve been getting the sandostatin monthly shot to prayerfully stop the progression or even shrink them , my oncologist said the tumor on liver wasn’t in a good spot to operate , your not alone keep the faith 🙏🏽

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