Maybe I can share a little about how Mayo Connect works? We are a group of people who are living with a variety of conditions, sharing experiences and helping one another along the way.

The MAC & Bronchiectasis group where you are posting has about 1000 members, some more active than others. Overall, I have lost track, but there are over 100,000 members participating in 70 groups.

Here are the roles of the participants in Mayo Connect:

There are just a couple of Mayo employees who are the "Moderators" of this entire system. Their job is to ensure that each poster gets some response, that posts are in the most appropriate place to get the best response, and that community guidelines are followed.

They are assisted by about 2 dozen "Volunteer Mentors" who are tasked with keeping discussions moving along. These are members who have a little extra time to devote to keeping Connect humming along. I am privileged to be one of those people, so you will see me frequently in this group, however I have no special expertise or magical powers - just a bit of acquired knowledge and a desire to help where I can. It is impossible for me to answer every post or question, even if I do know the answer.

Finally there are our awesome "Members" who step in and assist each other by responding to any question where they know the answer. This is the backbone and heart of Mayo Connect - people supporting each other on their journey. You are welcome to do the same, as you learn more on your journey with MAC/NTM.

I hope this answers your question. As a volunteer with many other responsibilities in my life, sometimes I am not on Connect for hours or days at a time - you wouldn't want to wait that long for a reply, would you? Also, be assured that if someone posts incorrect information, other members will soon step in to post the right information.

I hope you will continue to lean on Connect as you find your way through the maze that is MAC/NTM and its management!
Sue

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