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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: Jun 23 1:02pm | Replies (359)

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@katgusman

I have suffered with my body tremors for years and they can never find much with me either. It takes a toll on the mental health. It is truly frustrating that doctors don’t seem to crave enough knowledge to figure out what the heck is happening to people.

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Replies to "I have suffered with my body tremors for years and they can never find much with..."

I agree. I have seen dozens of doctors from neurologist to endocrinologist to rheumatologist to cardiologist to primary care doctors to internal medicine doctors and all of these doctors just shrug their shoulders and say it's either anxiety so go on antidepressants or it's benign fasciculation syndrome And there's nothing we can do about it and you just have to go home and live with it. I've never seen such nonchalant attitudes. And then all these doctors circle the wagons and get all their notes together and then they all just say it's anxiety and they totally ignore what the patient like myself is telling them. No this is beyond anxiety This has got every single part of my body short circuiting and times where my sensory perception I feel like I'm in another dimension like my body's shifted sensory-wise I can't explain it but I tell them it affects my vision my breathing my heart my extremities can go numb pins and needles sharp stabbing pains muscle twitching in every single part of my body 24/7 it never stops It affects my bowels or I can actually poop in my pants and some of these symptoms will rotate one symptom will disappear but then another new symptom will crop up or a symptom I had two years ago that disappeared has now returned. It's relentless. But these doctors in my opinion just do not give a damn. Maybe like so many people say doctors make money on people that are sick. Pharmaceutical companies make huge billions of dollars every year with all these different drugs that they push off on people and it makes the pharmaceutical companies billionaires so in my opinion I'm beginning to believe what a lot of other people have said that doctors are not in it for the most part to make you healthy because it would put them out of business. So we have tests after test after test which rakes in more money for the hospitals and they put us on all these different drugs for muscle twitching or muscle aches or for bowel problems or for heart rate problems or blood pressure problems all caused by this supposed benign fasciculation syndrome. There's nothing benign about any of this. But these doctors in my opinion just don't give a damn. I've told many people I believe that are health care system is collapsed there's something wrong with it and it's below third world country status. I just wish some of these Mayo Clinic doctors would step up to the microphone and start having press conferences start organizing for patient seminars throughout the state of Florida that we can attend. someone's got to give a damn from the medical community instead of sending us home and telling us we just need to learn to live with it We just need to deal with it We just need not to be so full of anxiety and all this will go away. I'm sick of it