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Any LEMS (Lambert-Eaton Myasthenic Syndrome) people out there?

Autoimmune Diseases | Last Active: Jun 24, 2023 | Replies (27)
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@kelkelkel

Hi. He said it was the firdapse. It sounds like an orphan drug. Has anyone had luck getting it approved on insurance? My regular pharmacy can't even order it. I guess it will be what it is.

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Replies to "Hi. He said it was the firdapse. It sounds like an orphan drug. Has anyone had..."
John, Volunteer Mentor | @johnbishop | Sep 17, 2022

Hi @kelkelkel, I'm hoping someone that has ordered Firdapse can share their experience with you. The drug company does have a website with contact and other information the might help you find how to order it. The first link Access & Affordability mentions this - "Complete the Enrollment Form with your doctor or call 1-833-4-CATALYST (1-833-422-8259) for assistance."

-- Access & Affordability
Explore How To Access FIRDAPSE And Financial Support Options.
https://www.firdapse.com/starting-firdapse/access-affordability/
-- Answers to Frequently Asked Questions:
https://www.firdapse.com/resources/faqs/
Hope this helps.

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