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Neuropathy post-Covid infection: Is there treatment that helps?

Post-COVID Recovery & COVID-19 | Last Active: May 8, 2024 | Replies (109)
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@erpikus2020

At age 19, I had a sudden onset of paraesthesia in Dec 2020. I had Covid in previous July. EMG shows bilateral nerve conduction loss (Dec 2020, Jan 2021, Feb 2022). I had to take a leave from college but was able to pull back together and go back. Between the Gabbapentin and nerve pain I finally left college. MRI of head, back, foot show no answers. I am not diabetic. Neurologists said this would likely go away but this December will be 2 years of daily pain. I feel like I am slipping away and frustrated that doctors don't have answers and don't have the urgency. My Neurologist just retired and I feel like I am starting over with no answers. Does anyone have advice for next steps?

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Replies to "At age 19, I had a sudden onset of paraesthesia in Dec 2020. I had Covid..."
John, Volunteer Mentor | @johnbishop | Sep 16, 2022

Hi @erpikus2020, Welcome to Connect. It's understandable that you are frustrated that no one has any answers for your neuropathy. Sorry to hear your neurologist retired. I can imagine that just doubles the whammy with lack of answers. I don't think you are alone. The one thing I can suggest which I think is what you are doing now, is to keep learning as much as you can about your condition and any treatments available that may offer some relief. Along with the members here on Connect and the discussion in the Neuropathy group here - https://connect.mayoclinic.org/group/neuropathy/, the two following sites are my go to for learning available treatments and finding information about neuropathy.

-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/

There's also a couple of other discussions you might find helpful on your journey:
-- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Have you tried any complementary or alternative treatments?

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