I have had EMPD since 2013 but did not know it. Every dermatologist or OBGYN told me I had Herpes or Ezcema or some kind of keritosis. I was prescribed steroid creams and herpes drugs. Finally, in 2021 I went to a new dermatologist for annual skin cancer screening. I asked if he was comfortable checking a condition in my gential area. Yes he was; and he did a biopsy. The biopsy came back EMPD. The dermatologist had previously worked at Moffitt Cancer center in Tampa; and was able to get me in for consult land surgery. One side of my labia was completely removed; and the other side was partially removed. They suspected that is was non-invasive.
Shortly after, they suspected it was invasive because my lymph node in my groin became enlarged.
Groin lymph node biopsy came back as having triple negative breast cancer. Subsequent 3-D mammogram and PET scan showed no breast cancer.
I was started on Taxotere chemo since they did not know what I really had or what to do with me. Tumor boards at both Moffitt and Florida Cancer Center in Tavares, FL were convened.
more.......if interested and/or important. I would like to enroll in the clinical observational study you mentioned in your previous response.