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Benign fasciculation syndrome (BFS)
Brain & Nervous System | Last Active: Nov 14 4:35am | Replies (415)Comment receiving replies
Sorry to hear that; my journey started after the second Pfizer vaccine end May 2021 when I noticed twitching and spasms in my legs; since then I have had all the tests available and the outcome was BFS; after a 9 month wait I am now finally going to have a test for small fibre neuropathy (SFN) which will be next week and the whole day will be of tests….. the results will take 8 weeks. After that I will have closure knowing I have done all I can.
Tests so far were MRI, EMG, Doppler, various neurologists. I am so sick of the many medical visits since this happened. I have tried various drugs and they don’t help. I suppose I will just have to learn to live with it.
I wish you all the best…
Replies to "Sorry to hear that; my journey started after the second Pfizer vaccine end May 2021 when..."
So, I just switched from Crestor (Rosuvastatin) to (Astorvastatin) Lipitor and we’ll see if that changes anything.
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Sorry to hear about all your struggles. I also have the twitching but I’m also having it in my tongue, shoulders, calves. Had EMG MRI and tested good. All happened after Covid. Had my first shot and started showing symptoms. Hopefully it doesn’t progress into anything worse but it’s certainly Neurological.