← Return to Benign fasciculation syndrome (BFS)

Discussion

Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

Comment receiving replies
@michelle1000

I am also new to this group and was amazed at the amount of people, who suffer from this! This is new for me since February and I feel like my BFS is a result of the 3rd Moderna vaccine. I’ve been tested, poked, prodded and shocked (EMG), MRI from Brain to Lumbar spine, DNA complete genome test and ION micro nutrient tested. I’ve had zoom calls with the top neurologist in Tel Aviv and the Clevelend Clinic. Upon studying my full reports, they found nothing. I should be happy I suppose, that the bad diseases are ruled out, but this isn’t pleasant either! I’ve tweaked my supplements ( NAC, Mg, CoQ10, Omega 3, Glutathione, B12, Turmeric, Nicotinamide, Selenium, Iodine) 10 times, changed my BP meds and got off of the low dose of Nortryiptyline, I was taking for migraines. Nothing helps and I feel like Benadryl and melatonin make it worse. I cannot stop my Crestor as I have a stent in my LAD. Not sure if Crestor could be the culprit. Other generic Rosuvastatins caused muscle tremors initially, until I started taking Crestor. But Crestor is also Rosuvastatin, I don’t know. I would love to have one night’s sleep without waking from this. My neurologist prescribed Gabapentin, but that made it worse and the thought of trying Lyrica just scares me. I drink 2 liters of H2O daily and take probiotics, electrolytes plus extra 1000mg combo magnesium supplements. I eat healthy and watch my diet carefully. Does anyone have any other suggestions?

Jump to this post


Replies to "I am also new to this group and was amazed at the amount of people, who..."

Sorry to hear that; my journey started after the second Pfizer vaccine end May 2021 when I noticed twitching and spasms in my legs; since then I have had all the tests available and the outcome was BFS; after a 9 month wait I am now finally going to have a test for small fibre neuropathy (SFN) which will be next week and the whole day will be of tests….. the results will take 8 weeks. After that I will have closure knowing I have done all I can.
Tests so far were MRI, EMG, Doppler, various neurologists. I am so sick of the many medical visits since this happened. I have tried various drugs and they don’t help. I suppose I will just have to learn to live with it.
I wish you all the best…