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Diagnosed with Meningioma

Brain Tumor | Last Active: Apr 8, 2023 | Replies (50)

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@rsfcowgirl

Hi. I'm newly diagnosed too. I haven't gone thru surgery but have read here the many postings about great neurosurgeons who specialize in our tumor types and the good results people have had. There are options. But all would agree that the most important action is to have an experienced neurosurgeon in skull based tumors. As for fear, of course anyone would feel that. People here can help you thru the journey. My diagnosing Primary Care MD was no help. I found Brain Tumor Network- a no charge comprehensive RN navigation and education + support organization. Made everything so easy. Gave me my medical services options, specific info and even sent my MRI's to a specialist I wanted to consult for me. I am stable and under observation status. Not having surgery. Someone from Mayo Clinic will have a great response for you shortly as I've seen here time after time. I draw from my deep faith as my way of coping. I also take calming supplements. But we are all different. Hang in there. I know it's alot to handle. You can get thru it and never have to go it alone. Wishing you the best.

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Replies to "Hi. I'm newly diagnosed too. I haven't gone thru surgery but have read here the many..."

Thank you so much for reaching out to me. Thanks for your words of encouragement. I am not getting as much info from my doc. I am schedule for surgery and I am having second thoughts