← Return to Diagnosed with Meningioma
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Brain Tumor | Last Active: Apr 8, 2023 | Replies (50)
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Replies to "Diagnosed with meningioma and really need someone to talk to"
Hi J mart,
I was diagnosed in 2018 with a meningioma and it was scary. Luckily, my neuro-ophthalmologist sent me to brain surgeon who specializes in Gamma Ray surgery. Jill, another Gamma Ray gal, walked me through it and I had no problems. I did have to get an MRI every 6 months and then once a year and now I'm down to every 3 years. It's always on my mind but the MRI reassures me that the Gamma Ray surgery did its job. If you can get that, then go for it.
Let me know how you are doing.
Joan
Hi. I'm not an expert but I have one. I know how frightening and disruptive it is to hear the diagnosis. I found Brain Tumor Network 1 844-286-6110. They are comprehensive for no cost professional (RN) phone and hand on support for the entire journey. They also provide you with options for top medical care, such as Mayo Clinic or true experts in your area. So glad you reached out. Someone from Mayo here will respond shortly. I'm stepping up so you have a connection to grab onto.