Connect
← Return to Anyone with colon cancer metastasis to ureter and/or bladder?
Discussion
Anyone with colon cancer metastasis to ureter and/or bladder?
Colorectal Cancer | Last Active: Oct 16, 2022 | Replies (19)Comment receiving replies
Thank you for your advice, Sue. I just told my Oncologist 3 days ago that I want to be referred to Mayo Rochester for a second opinion and to schedule surgery there. The surgeon who removed my left kidney and ureter last year only talked with me about removing my bladder. He did not mention neobladder. I learned about that on my own.
I had not begun to think of questions, but after reading your post, I read more about neobladder and several questions occurred to me. Being a primary colon cancer patient with mets through my ureter into my bladder, I now wonder if neobladder surgery would be safe for me since I've had 2 colon resections, the last being in 2006. Do you mind telling me the time lapse/frame of your husband's surgery, complications, subsequent surgery(ies)?
I will follow your advice, and I pray your husband's recovery from this point will go much better with few, if any, complications.
Replies to "Thank you for your advice, Sue. I just told my Oncologist 3 days ago that I..."
How are you doing, @suzyq2009? Did you submit a referral to Mayo Clinic? Any updates on treatment decisions?
Connect
Our experience with neobladder surgery has certainly included several complications and we are still dealing with more surgeries needed 9 months after the original surgery. With your history of colon cancer and surgery, I wonder if you would even be a candidate for neobladder. They must have enough ileum to form the neobladder, and scar tissue from previous surgeries is a big issue. It seems to me creating a neobladder would increase your odds of having a colon cancer recurrence there, vs a urostomy. It will be months before we know how well Tim can do with his neobladder, and he has lost some kidney function as a result of the complications. After the fact, we are finding out about the frequency of complications, because we did not ask enough questions about that topic in making our decision. Tim knew he did not want a urostomy, so his decision was made early. Knowing what we know now, I would have pushed for a urostomy over neobladder, but it wasn't my decision. Timeframe for Tim: 9/2019 partial cystectomy for invasive bladder cancer. 12/2021 total cystectomy,prostatectomy with neobladder creation. 122 abscess of incision line led to draining using thru incision, Leaking are was plugged by adjusting the foley catheter balloon. 3/22 CT scan shows one ureter partially plugged. 6/22 CT ureter is now closed off, not patent, causing hydronephrosis on that side. a week later a nephrostomy tube was placed and they tried unsuccessfully to open ureter, also biopsy showed no cancer there. Finally have an October 13 appointment to have ureter surgery to remove blocked portion and reattach to neobladder. The surgeon hopes to do it robotically and says very slight risk of complications from this surgery. Once this is healed, he can have the large incisional hernia repaired that was the result of the abscess,etc. This has been 3 years of multiple cystoscopies, biopsies, catheters and stents. It sounds like you are well aware of these things. Best of luck to you.