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@billchitwood

Yesterday we went to Mayo for two appointments, afternoon one to be 4 hour testing on the dementia. Checked in for first appointment and panic ensued as his vitals were 78/38 Heart rate 53. Room quickly filled up with emergency people - then off to Mayo ER. Robin arrived, leaving her 6th grade class doing a non stress math test. Lots of tests run - they still have him and running more tests. Not sure if he gets sprung today or not (no transportation until late afternoon). Robin and I finally got home about 7pm so a very long day as started for Mayo at 8:15am Ubering.
What is odd on notes it was mentioned ​ HTN with CKD stage 4 - among other problems he has. His GFR has consistently shown Stage 3 a or b (goes up and down from a/b). They did confirm yesterday he is anemic, which I had guessed from previous blood tests.
Does anyone know what HTN with CKD means? And is that why they are showing Stage 4?
Haven't been able to talk to him as his phone is goofed up. Since he can no longer use phones without my help I'm not sure if he goofed it up or it is just goofed up!
So now need to reschedule another whole day at Mayo! At least their food is good - although we didn't get to eat yesterday as in ER - and it was packed. Tried for steak and lobster but they said they had just given the last one away lol.
So waiting for doctor's report.
I did get to ride in the front seat of the ambulance. A first and hope not to be repeated. That ER room was freezing. They did bring in blankets for the three of us but still cold. It felt so good to walk out into Phoenix heat!

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Replies to "Yesterday we went to Mayo for two appointments, afternoon one to be 4 hour testing on..."

Oh my, Julia - What an unwelcome adventure.
HTN is medical shorthand for hypertension - high blood pressure - so the note is puzzling, to say the least.
As for communication in the hospital - what we did when my Mom was no longer able to use her cell independently was to put our numbers on the patient communication boards in the room, with a note to staff - "Please assist PT by dialing room phone for her to call us any time."
It also worked for us last year when out friend was in hospital in TX and couldn't dial.

We always bring warm jackets to clinic or hospital - staff is running around, we're sitting - naturally they lower temp to stay comfortable.

Good luck and thank you for the update.
Sue

Julie, I take meds for high blood pressure. And my blood pressure is controlled with the prescribed medications. So - all of my health records list me with HTN, even though it is controlled with meds.

Hello: Julie Chitwood @billchitwood

I am kidney transplant recipient ( my wife donated her kidney .. for which I am eternally grateful)
here are some of info I can share with you based on my experiences prior to the kidney transplant.

CKD= Five stages of chronic kidney disease
Stage 1 with normal or high GFR (GFR > 90 mL/min)
Stage 2 Mild CKD (GFR = 60-89 mL/min)
Stage 3A Moderate CKD (GFR = 45-59 mL/min)
Stage 3B Moderate CKD (GFR = 30-44 mL/min)
Stage 4 Severe CKD (GFR = 15-29 mL/min)
Stage 5 End Stage CKD (GFR <15 mL/min)

Yes as my kidney function deteriorated over time - I did become anemic too, figured that out why it happened after the kidney transplant - basically kidney plays an important role in the red blood cell creation cycle, the kidney signals the bone marrow to produce RBC and as the kidney function reduces the signal gets weaker (is my understanding) and hence less RBC are generated leading to anemia.

I had Stage 3B around in my 50s and had my transplant @ 70, A good nephrologist can help you navigate this CKD journey.

Also Low or high BP is not desirable if one experiences Kidney GFR issues, low BP reduces the perfusion function in the kidney where as high blood pressure destroys the nephron filters of the kidney

Best Wishes