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Newly diagnosed with NET in liver
Neuroendocrine Tumors (NETs) | Last Active: Dec 11, 2022 | Replies (24)Comment receiving replies
I was diagnosed with a NET in my liver, the source of the tumor is in my small intestine. I will be having surgery at the end of September. I would like to know how to join the support group that meets monthly. I would also appreciate advice or suggestions from others who have been through surgery on their small intestine and liver. What is important to ask or know going into this surgery? Thank you in advance for your help.
Replies to "I was diagnosed with a NET in my liver, the source of the tumor is in..."
Hello @christine714
I would like to join @colleenyoung and @sophiarose in welcoming you to Connect. I can so understand your wanting to have as much information as possible going to surgery. As I have had three surgeries for NETs in the upper digestive tract (duodenal bulb) I can remember how foreign it was to be diagnosed with a type of cancer that wasn't typical but rare.
I agree with @sophiarose that the more you know in advance, the better you will be able to cope with the upcoming surgery and treatment plan. The monthly support group is a great way to learn about NETs as well as meet with others who are traveling on this same journey. There are others in the group who also have liver METs and will gladly share with you. I have put you on the list to receive and invitation to the next support group in October. As it is a virtual support group, via Zoom, you can attend from any part of the country.
I look forward to hearing from you again. If you are comfortable sharing more, I'm wondering if there were symptoms that led to this diagnosis and what tests you had that confirmed the NETs?
Hello @christine714
When you posted last month, you indicated that you would be having surgery at the end of September. I was thinking about you and wondering how you are feeling post-surgery.
When it's convenient, will you post an update?
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Welcome, Christine. You're not alone. I moved your message to this existing discussion:
- Newly diagnosed with NET in liver https://connect.mayoclinic.org/discussion/newly-diagnosed-with-net-in-liver/
I did this so you can read previous posts and connect easily with members like @sophiarose @mkmn @cu2 @pjsheridan2022 @jay1225 @hopeful33250 @spartan and others who have experience with NETs that has metasisized to the liver.
Christine, you asked about the monthly support group on Zoom. You can find more information by clicking EVENTS at the top of the website. But allow me to give you the direct link for the next meeting Oct 6. See here:
- Neuroendocrine Cancer Support Group Meeting https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-fl-1-117/
I like the question you asked of members: "What is important to ask or know going into this surgery?" Is your surgery to remove part of the small intestine or to remove part of your liver, or both?