My situation is exactly like yours, except that I have many other conditions that are taking me down also. I also have a husband and children who don't seem to get the agony I am in 24/7. I have four dogs that I try to keep exercised when I'm not in so much pain. The loneliness is extraordinary when it comes to suffering with the kind of disease that takes you down mentally and physically. I completely understand your miseries and truly hurt for you.