← Return to PMR with hand/wrist pain and swollen veins?
DiscussionPMR with hand/wrist pain and swollen veins?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 25 5:38am | Replies (36)Comment receiving replies
Replies to "Continuing from preceding comment….. Advice from my rheumatologist: 1. Inflammatory markers normal over recent months. 2...."
Mind you...I am no doctor! I speak to you as another 82 year old and am going to share my rheumy's thoughts. I was finally diagnosed with GCA in 2019. Presently I am on 3 mg daily plus Actemra weekly painless injections.
I never got down to single digits until this year and that was at a prescribed reduction rate of .5mg per month. I do think most of the body 'miseries' are already done to my body after high doses like 80,60,40,15-----for all this time.
We are all unique I know~~so I hope your taper goes well, but personally I wouldn't care if I remained on a low dosage. I have a friend in NH who has been on 1mg for 23 year, feels fine, but cannot go without it. There is a well know rheumatologist in England, Dr. Dasgupta, who believes in keeping patients on a 2-3 mg dosage. Of course, -0- is best but I've always felt my quality of life meant more, especially soon to be 83.
I wonder what Mayo's opinion is about long term maintenance dosage? My best to you~💞
Thank you for sharing, though not what I want to accept as I see my rheumatologist next week due to swelling and pain in hands.