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PMR: Pain moving around your body

Polymyalgia Rheumatica (PMR) | Last Active: Sep 24, 2022 | Replies (40)

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@anitacs

Yes it is a weird disease. I've only been diagnosed recently and this is my 5th day on pred. I had to split my dose because nothing was working for the morning stiffness. I truly could not walk. Today I woke up at 5am and wiggled my legs and they worked! Hallelujah.

I do have severe shoulder pain but I think it was how I was sleeping. Need to work on that.

So glad this support group exists. No one understands this but us.

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Replies to "Yes it is a weird disease. I've only been diagnosed recently and this is my 5th..."

Hello @anitacs, Welcome to Connect. PMR can bad news when the pain is not controlled. It's good that splitting your dose helped. I've had 2 occurrences of PMR and started both at 20 mg prednisone which kept me pretty much pain free until the next morning's dose. As you start tapering off when you start to feel better, you might find the following discussions helpful.

-- PMR Dosages and Managing Symptoms:
https://connect.mayoclinic.org/discussion/pmr-dosages/
-- Tapering off of Prednisone:
https://connect.mayoclinic.org/discussion/prednisone/
What dosage of prednisone did you start with?