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← Return to Reccurrence?..Waiting on biopsy results
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Reccurrence?..Waiting on biopsy results
Breast Cancer | Last Active: May 10 3:02pm | Replies (60)Comment receiving replies
Thank you for your comments.
Yes, I walk almost daily.. big help. Along with following medical advise I also read a lot of mindfulness stuff, do meditation and journal. I also have a great therapist. I volunteer at my local hospital as well.
My surgical oncology team at Shands in Jax explained to me recently that they have no control over reports that get released from the gastroenterology specialist or pathology that released the results to my patient portal. Maybe they should but they don’t sadly.
The surgical oncologist I see at Shands who reviews the path report, decides what steps to take next. He is highly skilled and specialized with 20 plus years experience in cancer of the liver, pancreas, esophagus, etc . My tumor or lymph node is in the porta hepatic area near the liver.
I was offered an appt tomorrow at 4:30 but declined because my daughter is out of town and I want her with me for support plus I would be driving bing interstate 95 at rush hour for an hour and a half each way. I did not want to put that additional stress on my self of going alone. So my next appt is Tues 9/20 to see where we go from here.
Every day is a day of discipline to stay focused on the moment in front of me.
Perhaps my winding up in the ER back in April was a good thing which is how this whole experience started.
It’s just with each new report it is hard not to panic but I am trying.
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I just wanted to share with you something I did yesterday. Our internet provider had our internet down all day yesterday. We are also waiting on some test results to see if my husband is going to have to go off his chemo for a while because of something on his legs. This is all pretty distressing to me. I turned on my music and started knitting a charted color work hat.
Wow, the worry just melted away for about four hours until the teenager across the street came and said it was time for her to come help with barn chores. I haven’t let myself just lose that much time in as long as I can remember.
Do you knit, or paint, or some other creative hobby?
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Hi Meme5 … the new freedom of one’s own medical information act ( forget actual name) has legally required all path reports to be posted to portals as soon as they are released by pathology. Sometimes we see it before our doctors do.
I like this advance in patient information but I don’t go to the portal if it’s an area that I feel needs my health professionals to sort for me. It’s a tough discipline but it sometimes works.
I’m VERY glad to hear you were offered an early appointment and I think you made a wise decision to wait until you had the support of your daughter to help you through your medical decisions.
Best of luck and keep on visiting all those wonderful stress reducing tools you have cultivated.
I’ll be thinking of you. 🌸