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Support for Young Adult with carcinoid tumor on ovary

Neuroendocrine Tumors (NETs) | Last Active: Oct 11, 2022 | Replies (10)
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@rowlandsb

Hi @hopeful33250
She is having her left ovary removed this Friday. Her pain is on the right-hand side but thankfully there doesn't seem to be any sign of any tumors on her right ovary. It would seem that her pain is unrelated to the carcinoid tumor they removed (the surgeon left the ovary in at this stage as she didn't think it was cancerous) so it was by chance they found it.

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Replies to "Hi @hopeful33250 She is having her left ovary removed this Friday. Her pain is on the..."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 13, 2022

Hello @rowlandsb

My thoughts go with you and your daughter as she has surgery on Friday. I hope that all goes well for her.

As this is a rare diagnosis, I found some information on the National Institute of Health website titled.
-Ovarian Stromal Carcinoid
https://pubmed.ncbi.nlm.nih.gov/35528006/
As I read this, I noticed that this type of carcinoid has thyroid components.

Has your daughter had any other scans (such as Gallium 68) to look for any other instances of carcinoids? If not, it might be wise to inquire about having further testing.

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