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Paresthesia, abnormal sensations

Neuropathy | Last Active: Mar 8, 2023 | Replies (85)

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@fisbo

Is anyone suffering the pins and needles and pain in the feet which is continuous. Gapapentin is not working and the dosage is 1800mg per day. It is a most dreadful thing to have as it prevents me from leading a normal life. It's been two and half years now. You can't get used to it.

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Replies to "Is anyone suffering the pins and needles and pain in the feet which is continuous. Gapapentin..."

Hello @fisbo. I am sure this has been very trying on you, physically and otherwise, as you alluded to.

You will notice that I have moved your post into an existing discussion on paresthesia, based on the neuropathy symptoms you shared. I did this to allow you to connect with members who can relate. You can find your post here:
- Paresthesia, abnormal sensations:
https://connect.mayoclinic.org/discussion/paresthesiaabnormal-sensation/

I would like to bring in members @beth11 @lorirenee1 and @rwinney who may be able to share more about their experiences that relate to what you are going through.

What you've described sounds like paresthesia. Have you heard of this before?

Do you have intense pain along with the pins and needles ?

Fisbo so sorry about this awful symptom. It’s so horrible. Mine is severe.
I have an entire shelf w/ 4 bins of supplements n herbals I take daily to support this n other nerve pain😢
Focus on organic foods, fresh as much as possible.
We switched to whole food vitamins only. Not synthetic vitamins ( we use Woodstock multi n B complex)
Gymnema Sylvestre-check if your diabetic because it lowers blood glucose a bit ( 2 / day).
Evening primrose oil 1000mg 2ea 3X / Day. Biggest help. Primrose is safe fr men too.
Kava-also good fr muscle twitching n soreness too. I take 400mg 3X / Day. A bit higher than recommended ( 250-300mg / day.
St John’s Wort-good fr almost all types of pain ( 300mg 3X / Day).
Calcium, magnesium , zinc. Makes sure all 3 are supplemented as they work together. Take calcium alone 2 hours away from th others.
( 1000mg, 800-1800mg, 100mg blend Krebs) / Day.
Get a GOOD water filter. Clean water is non existent. We use Pro One +. Th filters used also get antibiotics n pesticides. Most of us are toxic to start and as the inflammation grows our bodies get overrun. This was a major difference in how I felt. When we bought ours it’s THE best filter.
This is just to start. I know these all work to help too.
It’s a good idea to eliminate th 5 top food triggers also-just to check. I developed 2 which are now improving.
Dairy ( butter is ok fr some-organic only)
Nuts
Certain spices
Nightshade veggies
Gluten( not always about bloating). I developed a strange rash arms : legs.
Add a good SIBO probiotic. Do th reading. It’s complicated. Use a soil based probiotics.

I hope this is helpful fr u. It’s definitely helped me.
Also learn about thyroid n detoxing th liver. ALL these issues r about GUT health. Formulate questions “ holistic remedies for ________.

Hi there @fisbo. Ugh, I'm sorry you're having pins and needles and pain in your feet. Agreed, it is difficult to get used to.

Outside of meds and diet, have you explored using self-help tools like diaphragmatic breathing, stretching or meditation? Having heightened symptoms, and managing the acompanying emotional distress of life changes is stressful. How do you relieve stress? Do you have any hobbies or helpful distractions?