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Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (53)
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Hello @carolc66 and welcome to the NETs discussion group on Mayo Connect. While I've had three surgeries for NETs, I have never needed to take the octreotide injections. However, we do have other members like @char1962 who has taken octreotide injections, and perhaps she can answer the question about hair loss.
If you care to share more when was the NET discovered? Were you having symptoms prior to the diagnosis?
Replies to "Hello @carolc66 and welcome to the NETs discussion group on Mayo Connect. While I've had three..."
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Interested that octreotide was not prescribed for you. Seems like it is the norm. Would be interested in understanding your diagnosis. Would your surgeries able to remove all of the tumors and you had none left to treat and thus did not need octreotide. Thanks for sharing.