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Treatments for Carcinoids

Neuroendocrine Tumors (NETs) | Last Active: Jun 12, 2023 | Replies (52)
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@carolc66

I too have NET alongside my colon. So far the doctor is not suggesting any surgery. I am having a nuclear test done this week. Then I think that I am going to be having injections.
I have a question for those of you who are having the octreotide injections, my vanity is getting the best of me, but have you lost your hair?

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Replies to "I too have NET alongside my colon. So far the doctor is not suggesting any surgery...."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 12, 2022

Hello @carolc66 and welcome to the NETs discussion group on Mayo Connect. While I've had three surgeries for NETs, I have never needed to take the octreotide injections. However, we do have other members like @char1962 who has taken octreotide injections, and perhaps she can answer the question about hair loss.

If you care to share more when was the NET discovered? Were you having symptoms prior to the diagnosis?

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Teresa, Volunteer Mentor | @hopeful33250 | Oct 11, 2022

Hello @carolc66

You mentioned in your post that you would be having a nuclear test done in September and then possibly start injections.

Would like to share any updates regarding the nuclear test?

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