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To fala....yes, you are right about the cure. Many of us spent years figuring that if we could find the cause, we could find the cure. Makes sense. In many cases, that is the way medicine works. But, with PN...the odds of finding the cause are different. And, I agree that you get to the point of not trying to figure it out and turn to OK...how can I best live with this and at the same time live my life to the fullest and the sooner that realization hits you like a baseball right between the eyes, the better off you will be and begin to live your life with the disability of PN. That's what happened to me when my primary doc sat me down and she gave me the facts. She said look forward, not backwards. Difficult? Yes, but her advise is slowly working. Ed
Replies to "To fala....yes, you are right about the cure. Many of us spent years figuring that if..."
@njed Very wisely stated; I think it helps so much to hear from folks like you, @fala , our mentors, and so many others on here that this road has been travelled and to help us just get to the short cuts. Without this cyber community, as you know, most of know of nobody in our personal world like us, and start in disbelief of unknown medical conditions, and start the process by think we have to do the jobs the doctors aren’t doing. While we do need doctors in the journey that we’re compatible with, this forum sure has helped cross the bridge to reality or “the new normal “ and help the forward vs backward thinking, and using energy for constructive improvement and teamwork vs destructive activities. I hit a few road blocks, but have moved forward so much with the help of you and others. Now off to PT for some core and leg strengthening and some myofascial release (thanks for that tip @artscaping )
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Ed @njed, I think you hit the nail on the head 🙂. It sometimes takes us awhile to get to that point in our neuropathy journey but I think it helps once you accept that it's part of your new normal.
@lorirenee1 started a discussion on the topic that we probably should all revisit.
-- Have You Made Any Kind of Peace With Having Your Neuropathy?:
https://connect.mayoclinic.org/discussion/have-you-made-any-kind-of-peace-with-having-your-neuropathy/