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@rwinney

@lacy2 Hi Valerie, thank you for your reply. How annoying when we have odd symptoms that we just can't figure out. Sorry you're experiencing temperature sensitivities and burning. It's no fun at all!

Yes, Dr. Google is dangerous. Do you have an appointment yet with your PCP? That's the best place to start and then possibly a neurologist. Do you have a neurologist? I would get in to see someone as soon as you are able.

I'm not a medical professional, but in my opinion, you may be experiencing central sensitization syndrome (CSS) which may indicate some form of neuropathy. Also, have you begun any new medications that perhaps are causing side effects? Do you take pain medications?

Regarding pointers, I think the best thing you can do is to roll with it by finding distractions to take your mind off of what you're feeling and to try and not let it dictate. Keeping calm and deep breathing through flares may help calm your central and peripheral sensory nervous systems down. Work towards figuring out why it's happening and how it can be treated. Do you have other medical conditions that may be contributing?

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Replies to "@lacy2 Hi Valerie, thank you for your reply. How annoying when we have odd symptoms that..."

@rwinney and everyone yes I got p.n. in hands and feet 2016 after taking a quinolone medication NORFLOX, about ten days after finishing this antibiotic for a simple uti; also have a laundry list of non life threatening lillnesses; narrow angle glaucoma; ocular migraines; hypothyroid - had goitre and right side removed; and cancer cervix 1985 so have not has as much as some people but more than others.... and a sprinkling of anxiety and depression. Tonight the right side of face, neck, top of shoulder and r. top of chest burning like there's no tomorrow .... slightly flushed. The nurse didnt know whether to send me to dermatologist or neurologist and I said dermatologist as local, but have to wait til JAN. and its been like this almost 4 months... I should have said neurologist as have seen him out of town once and two zoom meetings over the years. It is surprising how much this hurts, the burning and lasts for hours... I did google Erythromelalgia and also Carcinoid Syndrome but really have no idea...tomorrow annual bloodwork at Clinic and I may ask if any nurse free but I doubt it. also they don't know what it is anyway. I MAY go to emerge if only to be able to see a doctor who may know what this is.... hate going when its not really an emergency but where I live if I go and its not an emergency they just leave us til the end, so can take a cushion, sandwich and book...will decide tomorrow. Also have a rash for last 3 months you can barely see but I can feel, over top of chest, side of neck and behind ears.... I know you cannot diagnoze on this site but sure would like to know if anyone else has this burning face and area! Thanks for the advice. No, not on pain meds as nurse doesnt now what it is.... etc. 🌹🌹🌹