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Hello @browndog and welcome to Mayo Clinic Connect. I can understand your concern about diet. I have had three surgeries for carcinoids of the upper digestive tract (duodenal bulb) and I do understand that it takes some time to find the right eating plan.
Mayo Clinic offers a virtual support group for NETs patients. It meets, via Zoom, on the first Thursday of each month. There are often guest speakers from Mayo's medical team and there is also an opportunity to talk with others who have NETs and get valuable input on their journey with this disorder. I would recommend that you join the next group that meets on the first Thursday of October at 5:30 p.m. EST. Watch for the registration information when it posts on Connect.
I was helped a great deal by getting a referral to a registered hospital dietician. Also, I've found that using some liquid nutrition drinks can be very helpful. I generally use one in the morning. I often add fruit to the drink and put it in a blender. It will add a lot of valuable vitamins and fiber in an easy-to-digest form.
Have you consulted with a registered dietician at your hospital?
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in reply to hopeful33250
thanks for your thoughts, yes I have seen a dietician, what he told me was that my diet was fine and to break it down from 3 meals per day to 4 or 5 smaller meals. I also juice every day, 4 apples, 5 carrots two sticks of cellery and a 3inch by 1 inch diameter piece of ginger, this drink helps to boost the immune system. i also drink blueberry juice, 12 oz. per day, this seems to reduce the number of bowel movements during the day, still some days are good and some aren't so good. For fibre I eat steel cut oatmeal every morning, and legumes are a big part of my diet.