Hi Laurie,
I told you I'd let you know my diagnosis: Severe, chronic erosive lichenoid musositis, lichen planus. Dentist is preparing trays for strong cortisone gels to be absorbed well. Have you had those? Joy!
I'm sure hoping your biopsy goes without adverse reaction and most likely will. Hope whatever it is, it is manageable fairly easily. The apprehension I totally get. I have bad gut too. Sure wish there was doc/researcher that worked on figuring how all this junk fits together so we could eliminate the source. I just don't buy that it just pops up and can't be fixed. I understand immunlogy pretty well and get the cascade but there has to be stressor if not genetic.
I have decided that I will go to Mayos if not happy with treatment offered in my hometown. I would like a complete workup on body instead of patchwork quilt that my healthcare system seems comfortable with:(
Sincere, best wishes to you and let me know how that dreaded biopsy goes and then conclusive diagnosis.