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Oral lichen Planus: What home remedies or medications help you?
Autoimmune Diseases | Last Active: Sep 8 7:53am | Replies (310)Comment receiving replies
@steveandsteph
Hi Steve and Steph. I've had painful lesions since 2020 with 2 or 3 diagnoses, 5 or 6 prescription meds, 4 or 5 doctors, and no definite diagnosis. One of the most eminent doctors thinks it is NOT Oral Lichen Planus. I've recently been confirmed by testing and diagnosed as having IBD, with very high inflammation markers. I know that UC and Crohns can have this symptom and have suggested it several times to my doctors. I finally have a long-requested appointment with an oral surgeon for a biopsy on October 19th!
I'd be grateful if you could tell me if you have the result of your biopsy yet. Also, were you laid up afterward with pain and not too able to eat, talk, etc. for a while?
I had a traumatic experience years ago with a tongue biopsy that ended up with hospitalization that night from excessive bleeding and blood transfusions. Very painful for a few weeks afterward. Needless to say, I'm a bit nervous for this new biopsy procedure. Lol.
Warm regards, Laurie
Replies to "@steveandsteph Hi Steve and Steph. I've had painful lesions since 2020 with 2 or 3 diagnoses,..."
I had a biopsy on both sides of me tongue done by my oral surgeon and was diagnosed with Lichens Planus. I did some research and it showed that you can have steroid injections directly injected into the ulcers. The oral surgeon did so and my ulcers on my tongue have cleared up.
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Laurie,
You have had too much time without proper diagnosis…. How horrible:( I feel really bad for you. I had biopsy and it takes 2 weeks to get patho and histology so I get results this Thursday and will let you know. Mine was sent to Florida University Oral Path lab… supposedly excellent but I’m very untrusting with this mouth mess so I’m having one done at UMKC at the recommendation of doc friend who was misdiagnosed with leukoplakia. Sometimes I think they just don’t know or can be wrong:(
On another note… I had zero pain after my biopsy that was done on my gums. He pulled six pieces and I was fine so think you will be good:)))
Best wishes, Thais really is tiring and scary for you… I know too well.
I’m a nurse so I recommend one thing … get your Shingles vax as when you talked steroids, they hurt your immune system and ya sure don’t want to add insult of shingles.