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Diagnosed with cholangiocarcinoma, can this be treated?
Liver Cancer | Last Active: Jan 11 10:12pm | Replies (35)Comment receiving replies
Sorry to hear you must wrestle this beast. First choice was gem/cis chemo. Completed 8 cycles 16 rounds of chemo with little side effects. Selected mayo as second opinion back in may. Shrunk most tumors but somr growth. No new cancer is the good news Now on Folfox 6 . A bit heavier with nerapthy the worst side effect. Mayo will reevaluate in december
Good luck, happy to talk
Bill
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@wjdemarco - Bill - I haven’t had any infusions yet. My local oncologist offered up gem/cis with immune therapy. Have you tried the immune therapy yet? It was FDA approved based on a study TOPAZ-1. I have Cholangiocarcinoma (thought could operate) but found enlarged lymph nodes in chest. Headed to Mayo for biopsy to see what is in the chest. Suspect Bilary cancer moved to lymph nodes so surgery isn’t option. I pray that my local team was wrong. What’s a course, cycle or count of chemo mean? And how long have you been fighting this? I was recently diagnosed. Thank you!