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Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA
Polymyalgia Rheumatica (PMR) | Last Active: Apr 13 11:57am | Replies (92)Comment receiving replies
Hi,
I started on 20 mg four years ago. Tried to taper off twice and failed. Starting tapering from a dose of 10 mg this time last year. Held at 2 mg for several months and felt horrible with a lot of pain. Went on Actemra three months ago and tapered to 1 mg. I see my rheumatologist in a week and am hoping to get off!!!
Actemra is a wonder drug for me!!! I still experience lots of fatigue but wonder how much of that is due to long Covid. But being pain free is wonderful!!! I just worry about long term effects.
Best wishes to you!
Replies to "Hi, I started on 20 mg four years ago. Tried to taper off twice and failed...."
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You are so fortunate. I went on Actemra and the drug side effects were so severe for me that I had to get off. Also tried Methotrexate- no go. And here I worried about giving myself the injection( piece of cake) and never the drug side effects!