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Rare Disease Frustrating Patient and Doctors

Just Want to Talk | Last Active: Sep 15, 2022 | Replies (8)

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@lacy2

......rare diseases, unfamiliar symptoms, ageing; thing is with me once the doctor/n.p. hears about anxiety and depression which I have dealt with on and off for years... they seem to concentrate on that and it's as if they think the physical is 'caused' by mental health - which it possibly could be but not this time around nor my previous cancer, half thyroid and appendix out, and narrow angle glaucoma - blood tests in a few days but they never say what the tests are for etc., so for 2nd time only am taking daughter with me so she can ask....these episodes of not only flushing in face and other body parts which 'BURN' for hours.... I'm having to take photos for proof as sometimes the burning is without pinkness/redness..... I wish everyone the best and although I don't want to find out have a mysterious disease, would rather know and then face it. Take care.....J.

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Replies to "......rare diseases, unfamiliar symptoms, ageing; thing is with me once the doctor/n.p. hears about anxiety and..."

Mayo in Rochester found the answer. I had a foot that burned & was hot & cold & then mottled & painful. A sympathetic block stopped the pain & warmed the foot up within 10 minutes!
Needed one every 6 months but it got me on my feet and working all day once again