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Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Polymyalgia Rheumatica (PMR) | Last Active: Apr 13 11:57am | Replies (92)
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@barb01001

Hi Linda
How many mg of prednisone were you on when you started actemra? I have been on it for 2 months with 10mg of predisone.
Thanks

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Replies to "Hi Linda How many mg of prednisone were you on when you started actemra? I have..."
Linda Moross | @lmoross | Sep 11, 2022

Hi,
I started on 20 mg four years ago. Tried to taper off twice and failed. Starting tapering from a dose of 10 mg this time last year. Held at 2 mg for several months and felt horrible with a lot of pain. Went on Actemra three months ago and tapered to 1 mg. I see my rheumatologist in a week and am hoping to get off!!!
Actemra is a wonder drug for me!!! I still experience lots of fatigue but wonder how much of that is due to long Covid. But being pain free is wonderful!!! I just worry about long term effects.
Best wishes to you!

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