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For anyone who can't find a diagnosis: Undiagnosed Disease Network

Autoimmune Diseases | Last Active: Jan 27, 2023 | Replies (63)
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@donnasantella

Hi, been through the mill. Foggy brain and balance issues over 2 years.. Been tested like a lab rat, same old sentence " your bloodwork is normal not sure what it is, maybe you should see this one or this one....mri's, Ct's each specialist rules out their area. None have bothered to talk to each other. Nothing worse than feeling unbelieveable. Confused about which Mayo location can help or where to start. Winter is coming, not rich cannot stay in hotels etc. Where to start? Any help would be so appreciated..

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Replies to "Hi, been through the mill. Foggy brain and balance issues over 2 years.. Been tested like..."
kittykelly1234 | @kittykelly1234 | Sep 11, 2022

I have been at this for almost 4 years. I understand your frustration as well as not being well. How can I help?

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Becky, Volunteer Mentor | @becsbuddy | Oct 4, 2022

@donnasantella I answered a question you had in another discussion. Then i saw this one. You sound like i did before i was finally diagnosed. So many trips to the ER because I couldn’t stop vomiting and all they did was give me some fluids and pat me on the shoulder. But we kept persisting. My husband knew i was really sick. I had to ask my PCP’s work partner for an MRI referral (my own PCP didn’t think i needed one). The MRI showed that I was right, that there was something very wrong.
Don’t give up. Keep advocating for yourself. Do you have someone who goes to appointments with you? Someone who also suspects that things aren’t right? They can back up what you say. Have you seen a rheumatologist—the younger ones have been educated in autoimmune diseases.
Do you think you can keep trying? Be sure to stay in touch-I care

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