Hello @char1962 and welcome to Connect. I'm so glad that you found this forum. As a three-time survivor of NET surgery, I understand how important it is to meet with people who understand the mystery of carcinoid cancer. It is a mysterious type of cancer and often goes undiagnosed or missed diagnosed for years.

I see that you also are part of the Carcinoid Cancer Foundation. It is a good group and they have many webinars that are invaluable with great speakers and good information.

I would also like to invite you to the Mayo Clinic support group for patients with neuroendocrine tumors. The NETs support group meets on the first Thursday of each month at 5:30 EST. It is a virtual support group so we have members from all over the country. I hope that you can join the next meeting.

If you care to share more, are there any other surgeries planned for your tumors?