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Discontinuing MAC antibiotics

MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)
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@kaykuz

I have it to. Some days worse than others and sometime none. Or it’s not coming up.
Latest Scan showed more bronchiectasis in the lower two lobes and pulmonologist thinks I have more mucus there and also MAI most likely. That’s why he started me on the vest.
I did have my virtual visit with him on Wednesday. I told him that I was surprised that I have had MAI since last September. He kept telling me I didn’t. But then he said that my two cultures in the fall were negative.
I am starting my regimen tomorrow evening.

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Replies to "I have it to. Some days worse than others and sometime none. Or it’s not coming..."
Sue, Volunteer Mentor | @sueinmn | Sep 10, 2022

Do they have you starting all the drugs tomorrow, or one at a time, at least one week apart?
Lower lobes often are good at hiding MAC because it is more difficult to get the mucus out, so the infection may not have shown up in a culture.
Good luck with the meds, we're here for you if you have questions or just need a hug and an ear.
Sue

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