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Discontinuing MAC antibiotics

MAC & Bronchiectasis | Last Active: Nov 27, 2023 | Replies (73)

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@sueinmn

Yes, untreated my mucus has almost the consistency of rubber cement. It is a family characteristic - my Dad and 2 brothers, my brother, one daughter, now my grandson seems to have it. My daughter was actually tested for CF genetic markers because of it. (No CF)

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Replies to "Yes, untreated my mucus has almost the consistency of rubber cement. It is a family characteristic..."

I have it to. Some days worse than others and sometime none. Or it’s not coming up.
Latest Scan showed more bronchiectasis in the lower two lobes and pulmonologist thinks I have more mucus there and also MAI most likely. That’s why he started me on the vest.
I did have my virtual visit with him on Wednesday. I told him that I was surprised that I have had MAI since last September. He kept telling me I didn’t. But then he said that my two cultures in the fall were negative.
I am starting my regimen tomorrow evening.