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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

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@melrg

Hello Annco,
First, I offer a hug and a cup of whatever warms you - this is hard stuff! And harder especially because no-one else can see it, or name it clearly as of yet. I well remember when I had my first Trigeminal Neuralgia 'attacks' - so painful I found myself on the floor, and being scared of what was going on, and what it might or might not be. It IS hard. Put your hand over your heart - apparently this has actual physiological calming effects - and press in slightly, just being with yourself in this difficult thing. If I could sit with you in your living room, I would. Whatever this is, you will learn how to be with yourself in it. And this great Connect site will bring people alongside. The unknown road will slowly slowly become a known road, and there will be others who walk it. I have come to learn this to be true. I don't know if this helps at all, but it is what I think I will have wanted to hear back in those early days of this condition.
After I'd had 3 'lightning-strike' painful TGN episodes that increased in intensity and length, and had received Carbamazepine and also taking Gabapentin, I headed over to a most sympathetic and compassionate friend's house, and stayed there for several days. Their gentle company was like a hand over my heart, soothing the frightened part of me, so I could begin to catch up with myself, with whatever was going on. I will be mindful of you on your road...

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Replies to "Hello Annco, First, I offer a hug and a cup of whatever warms you - this..."

Thank you for your kind words. It's heartwarming to hear from someone who has experienced this.