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DiscussionWhat helped you make treatment decisions following DCIS lumpectomy?
Breast Cancer | Last Active: Mar 18 8:02am | Replies (119)Comment receiving replies
Replies to "Siteman cancer center is ranked 11th in the nation. This would be an excellent choice for..."
Thank you for the encouragement! I know everyone responds differently to the various treatment options & there are a lot of variables involved in everyone’s journey so that effects everything as well. My surgeon said I’d have to talk to my Oncologist about the genetic testing after my lumpectomy & that they don’t do the test on the biopsy specimen?? I’m definitely interested in the Oconotype DX DCIS genetic test. I’m planning on using the results to help me decide on what treatment I want. I have a lumpectomy scheduled 9/21 & I have an appointment with an Oncologist on 9/26 to discuss the treatment options. I’m aware of Siteman Cancer Center. I was at that facility when my husband was diagnosed with terminal cancer after being misdiagnosed at another big local cancer center. 🥺 While his diagnosis was nowhere similar to mine, cancer freaks me out especially after seeing what can go wrong if dealing with the wrong facility &/or doctors. Depending on what the Oncologist has to say I may very well seek a 2nd opinion with Siteman, if for nothing else other than piece of mind. My main concern is radiation which the surgeon said I’ll need. From what I’ve researched this is the “standard care” after a lumpectomy. Since this is DCIS ER+/PR+ w/Comedo & in a small area (2cm) & I’m told the radiation is necessary for a “just in case some was missed” scenario. I think I may pass & give the hormone therapy a try before dismissing them as a preventative. I’m told I have a better chance now of getting another type or invasive cancer in the future which is the main reason I want the genetic testing to help determine my odds. My final decision will be based a lot on that & depending on the margins in the pathology report. If I get another cancer in the same breast, radiation would not be an option leaving a mastectomy as my only choice which is the reason I’m hesitant to get it now. I’ll be closely monitored for the rest of my life by getting a yearly mammogram & a yearly breast MRI (“flying superwomen pose” oh, joy 🤣) spaced 6 months apart. I feel this should help find any future cancers in the early stages. So many variables to juggle while your life could depend on decisions made now, hoping you’ll be in the 97% that are still alive in 20 years after DCIS treatment. This journey feels like walking in pitch black with only a rope to help guide you while getting rays of light from people on the same journey. So, sorry it’s long winded.