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Living with epilepsy - Introduce yourself & meet others

Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)
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@santosha

Hi @heal33
This Thursday, I have thought so much about you! We were without warm water here in our building on this day for maintenance purposes and I tried to take a cold shower. BRRRR, it did not work. Could just put my feet in cold water and gave up. Here in the southern hemisphere of the planet is wintertime by now. But I am splashing cold water on my face every day, introduced it after you recalled me of that suggestion of Dr. Cynthia Li.
I will read again what Dr. Cynthia Li says about the vagus nerve. Thank you for reminding me of that.
Have a great weekend!
Santosha

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Replies to "Hi @heal33 This Thursday, I have thought so much about you! We were without warm water..."
heal33 | @heal33 | Sep 10, 2022

Santosha,

I am trying to follow your suggestion of gluten free more strictly. I am also trying to get my doctor to reduce dosage of one of my drugs as it has never had my seizures under control. It seems hard to find a doctor who would assist me with CBD therapy. When I brought up Epidiolex (think that's the spelling) I guess it hasn't been approved for adults only children with certain types of seizures--Dravet seizures. So she (the physician's assistant) said I wouldn't be eligible. The drug has CBD .

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