Connect
← Return to Treatments for Carcinoids
Discussion
Comment receiving replies
Happy to here you doing better , I just joined this group and it’s paying off already I have multiple tumors now one on liver and 2 on ovaries my oncologist have me on the injections and I had 2 bad reactions to my first 2 shots severe constipation and I didn’t want to get another injection but they have a lower dose so I got today the 10 dosage , I’m doing everything in my power to offset this constipation so I can continue to take I know it’s a life saver , I appreciate the info you share about the specialist in Norfolk Virginia I live in NC and I’m really concern about the one on my liver the ones on ovaries not so much because will be 60 on the 13th of Sept and had 3 wonderful children , Thank God , I’ve also become a member of the carcinoid foundation and they really are a great resource , Thank you and may God continue to keep you 🙏🏽
Replies to "Happy to here you doing better , I just joined this group and it’s paying off..."
Connect
Hello @char1962 and welcome to Connect. I'm so glad that you found this forum. As a three-time survivor of NET surgery, I understand how important it is to meet with people who understand the mystery of carcinoid cancer. It is a mysterious type of cancer and often goes undiagnosed or missed diagnosed for years.
I see that you also are part of the Carcinoid Cancer Foundation. It is a good group and they have many webinars that are invaluable with great speakers and good information.
I would also like to invite you to the Mayo Clinic support group for patients with neuroendocrine tumors. The NETs support group meets on the first Thursday of each month at 5:30 EST. It is a virtual support group so we have members from all over the country. I hope that you can join the next meeting.
If you care to share more, are there any other surgeries planned for your tumors?