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Treatments for Carcinoids

Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (53)

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@char1962

Hi I’ve been living with carcinoid tumor now since 2011 when I first learned I had a Neuroendocrine tumor. I was diagnosed with all kinds of digestion system problems because my symptoms was consistent with IBS , heartburn etc . I had what I know now as flushing skin Ive seen countless gastroenterologist, with no success until 2011 I saw another specialist Dr. Anderson my earth angel and I told him my symptoms and he had me take a pill with a camera inside and a monitor send me home and the camera showed I had a large tumor , so I had surgery and was told to have scan every year to make sure it doesn’t come back , fast forward 2022 I now have 2 on my ovaries and one on my liver , I’m getting the Octretotide and I had severe constipation the first to shots so they reduce my dosage today and I hope and pray I don’t get sick , because my oncologist told me these shot control and prevent anymore tumors from growing

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Replies to "Hi I’ve been living with carcinoid tumor now since 2011 when I first learned I had..."

I will say a prayer for you! I am wondering if by any chance your Dr. Anderson is in Peoria , IL. My husband was just diagnosed with a NET in his lung. He has an appointment to see a Dr. Anderson in October. I am hoping this is your same earth angel!