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7% and excessive phlegm

MAC & Bronchiectasis | Last Active: Jan 2 10:08am | Replies (62)

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@raney

I was wondering if I was the only person in the world with the mucus that never ends. I am still spending 5 to 6 hours EVERYDAY doing airway clearance and standing over the bathroom sink and the mucus just keeps on coming. I never seem to get it all out. Twice a day airway clearance with Levalbuterol, followed by 7% saline and sometimes I use 2 vials of 7% one behind the other because of so much think mucus. Percussion Vest and Aerobic and active breathing. I also inhale budesonide when I am not being treated for Oral Thrush. It seems that 3 or 4 consecutive days of budesonide and then bad case of oral thrush, so I stop for about 2 weeks and take the prescription meds, and then try again.
I have explained this to every doctor for the past 2 years and they listen but I don't think they even understand how much it is . Like a faucet not being turned off!!
I am NOT on oxygen at night now AFTER a year of being on it.
I started with CPAP in June. I would have tossed it also if I had kept the same head set and face mask. I changed to a different make and company and now I am able to tolerate the CPAP. No sores on my face and I sleep well at night. It has been a blessing but different head gear and mask made the difference.

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Replies to "I was wondering if I was the only person in the world with the mucus that..."

Hello, you are not alone in terms of excessive mucus that never stops. I too am spending about 3 hours a day doing airway clearance along with sinus rinses for the non stop mucus production. My Doctors at National Jewish do not even think it is coming from my lungs, they referred me to a neurologist. I went to 3 different neuros and they looked at me like I was crazy, like I don’t need a neuro. I have gone to 3 ENT’s and 2 allergists who don’t know so they look at the first report from NJH which says go see a neuro so they just say the same thing. I use 7% saline and do try to cut it back to 3% sometimes and even go down to 0.09% just to get something into my lungs, and it all still just comes up into my throat. I honestly think it is coming from my sinus’s along with lungs. I did have my RML removed in 2022 to get the Bronchiectasis out and that has helped my lungs immensely however this chronic phlegm is such a daily drain on my life as I am coughing it up all the time. I do not have a solution yet. Something changed for me with using the vest and using the aerobika with 7% saline at the same time. I felt something was not right. Now I do not combine the vests with the saline as it seems counterproductive to compress your chest with the vest and breath in at the same time. I am convinced that started this whole hyper salivation and excessive phlegm issue. Yes, hyper-salivation for me is involved as well.