← Return to New to neuropathy, terrified and seeking advice from you guys

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@flag64

I somewhat agree but I’m also frustrated with my Mayo neurologist after hearing from this group that many of you also have numbness and pain in your lower abdomen. I asked mine if this could be my problem, he said absolutely not so my GI has spent the last 9 months trying to locate a neuroendocrine tumor (had one already) when my symptoms might be SFN! They should communicate with each other and maybe this neurologist doesn’t specialize in SFN…is there such a Dr?

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Replies to "I somewhat agree but I’m also frustrated with my Mayo neurologist after hearing from this group..."

@flag64 sometimes you just have to take the bull by the horn and be your own advocate. Check out this site for some great tips on how to work with your doctors.

The Patient Revolution - https://patientrevolution.org/read

Great Question. I would love to know.