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Trigeminal Neuralgia*

Brain & Nervous System | Last Active: Sep 18 11:18am | Replies (317)

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@annco2709

Hi, I recently had a few lightening bolt type episodes of pain shoot across my face. It happened 2 days in a row, and then I had a terrible ear ache. I waited a week and went to my doctor. My ear was fine. I still have horrible ear pain and occasional "pressure" feeling in my check, all on the right side. I saw a neurologist who said it is Trigeminal Neuralgia, and has ordered MRI's of my brain and neck. I am also on gabapentin right now. Since the face pain I have started having all kinds of twitching in my calves, and I also have been experiencing involuntary movements like my hand will jump or my shoulder will shrug, and now I am terrified that this is something more serious, like ALS. I do not notice any weakness, and I know my anxiety is at an all time high. I am just wondering if anyone has experienced this? With it settling mostly in my ear it makes me afraid it is not Trigeminal Neuralgia.

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Replies to "Hi, I recently had a few lightening bolt type episodes of pain shoot across my face...."

Hello @annco2709 and welcome to Mayo Clinic Connect. The sudden onset of symptoms surely has you concerned and anxious for good reason.

You will notice that I have moved your post into an existing discussion on Trigeminal Neuralgia, which you can find here: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/

I did this so that you may more easily connect with others who have had a similar experience to what you described. Members such as @jmb73 @larryg333 and @paulboe may be able to come in and share more about their experience with you.

Trigeminal neuralgia is a condition characterized by pain coming from the trigeminal nerve, which starts near the top of the ear and splits in three, toward the eye, cheek and jaw, which seems to align with where you have experienced the pain.

When is your MRI? Are you getting an relief from the Gabapentin?