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Has anyone taken the Big 3 Daily?
MAC & Bronchiectasis | Last Active: Sep 9, 2022 | Replies (30)Comment receiving replies
How long did it take before you got your MAI diagnosis?
Yes…a good pulmonologist is important.
Did you see an ID doctor?
Replies to "How long did it take before you got your MAI diagnosis? Yes…a good pulmonologist is important...."
When was I diagnosed?
The ER docs kept telling me the bleeding episodes were my sinuses even though they knew I had bronchiactasis
( diagnose 18 years ago) so went to ENT doc, and HE KNEW bleeding was my lungs, so got me in with top pulmonologist.
From there CT scan and bronchoscopy was done showing MAC and a coinfection of Staph Aureus which is what caused the continuing bleeding and clots, but I’d apparently had the MAC for years with no symptoms.
And yes, I also have an I.D. Doctor who specializes in NTM diseases.
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All my diseases were discovered accidentally. An x-ray picked up lung cancer. The pulmonologist noticed the feathery features and diagnosed it as MAI which a sputum sample verified. This was in Nov. 2021. I started antibiotics after surgery on 28 Dec. No ID dr.