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Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Polymyalgia Rheumatica (PMR) | Last Active: Apr 13 11:57am | Replies (92)
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@tracykarran

Would like to hear any comments on actemra for PMR. Last year I was also diagnosed with GCA and took it for a while but now just on prednisone

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Replies to "Would like to hear any comments on actemra for PMR. Last year I was also diagnosed..."
minijohn | @minijohn | Sep 9, 2022

I was originally diagnosed with PMR over 2 years ago. I went on a 10 month prednisone taper, but as I reduced the dosage, a milder version of the original symptoms returned along with temporal headaches and jaw discomfort. Yes, I was then diagnosed with GCA, was put on another prednisone taper, and started monthly infusions of Actemra. I no longer take prednisone but yesterday I received my 15th infusion. Later this month I have an appointment with my rheumatologist and my questions will be about tapering off or reducing the dose of Actemra. I would like to know if anyone else out there has experience with stopping the Actemra infusions for GCA.

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