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DiscussionDamage to legs from Henoch-Schonlein purpura? Stumped the doctors
Autoimmune Diseases | Last Active: Feb 7 8:21pm | Replies (47)Comment receiving replies
Replies to "Thank you the rash has gone down, She still has joint pain and must get her..."
Please read my post Re: Mayo trial for kidney involvement from IGA Vasculitis.
How are the kidneys doing?
Any protein or blood in the urine?
Hopefully not.
I am on a trial with Mayo Of Mycophenolate mofatil . Questions? Reach out.
Don’t be surprised if the rash recurs. Mine cycles about every 21 days.
Watch her kidneys carefully.
I understand kidney damage is more common in adults than children. That’s hopeful for your sweet girl.
I pray this will be a one off for her and will stay at bay.
To good health!