← Return to New to neuropathy, terrified and seeking advice from you guys

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@dbeshears1

I guess I liked the TV show “House” so much that I really believed there were dedicated teams at University hospitals to “connect the dots”. I too now accept many of us are much too complicated for the resources needed to do so in our world today. I do have a PCP I’m really impressed with, though as you know they can only connect you to a specialist for one type of system. I’ve had neurologists tell me at an appointment “you need to talk to your GI doc about that… that’s a question for your cardiologist “ etc. But I’ve accepted it now. It’s us, Dr. Google, and this great forum to help us learn maybe what good questions to next ask our doctors, and to learn how to maximize life while dealing with it.

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I somewhat agree but I’m also frustrated with my Mayo neurologist after hearing from this group that many of you also have numbness and pain in your lower abdomen. I asked mine if this could be my problem, he said absolutely not so my GI has spent the last 9 months trying to locate a neuroendocrine tumor (had one already) when my symptoms might be SFN! They should communicate with each other and maybe this neurologist doesn’t specialize in SFN…is there such a Dr?