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New to neuropathy, terrified and seeking advice from you guys
Neuropathy | Last Active: Oct 23, 2022 | Replies (109)Comment receiving replies
Thanks for sharing your experiences through this complicated journey. I know none of us are identical, but every single one of us are trying to advocate the best we can in these unchartered waters we’re going through simultaneously with a lot of our doctors. I am trained in finance, not medicine, so learning from folks like you with an edge in medical knowledge is a big benefit here. Sharing your diagnostic trials and errors helps us consider possible paths to take or avoid and discuss with our doctors as we navigate through our journeys. And you’re right, this Mayo Connect forum is the best way to hear from peers with experience on ways to understand, cope with, and live most practically & comfortably with our neuropathies. Please let us know what you discover!
Replies to "Thanks for sharing your experiences through this complicated journey. I know none of us are identical,..."
Deb, you are right! This Mayo forum has allowed me to find out more about PN in listening to others than I could have hoped to get from doctors. We are experiencing things that only we can discuss with others who share these alike symptoms because unless you have peripheral neuropathy - you don't know what this is like. I've found information from others to remind me that although I personally don't know of anyone else with this, friends or family, what I've found on Mayo Connect tells me that we are not alone. So, again, you are right, hearing about others is vital and offers a level of comfort.
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I most certainly will share. I have friends who say that they take a pill and ask me what it is for. I have seen this a lot in nursing. I have seen this in patients and I know people are scared. I have seen this in my own family. I have another friend who says I don't want to know. That makes me sad and troubled. I myself want to know. I don't like the unknown but have come to partially realize that there is some unknown. I will continue to ask questions and find answers. I was born a yankee and I am the only one in my family, however I really consider myself a REBEL I certainly don't know everything but I have a pad of paper and a pen and I write those things down to ask.